FSHD Stichting was founded in June 1997. Based in the Netherlands, its mission is to stimulate, coordinate and finance research into FSHD in order to develop a therapy for FSHD. We fund research projects that are aligned with the research strategy as developed together with the researchers and summarized in the so called “Roadmaps to Solutions”. Any researcher from anywhere in the world can apply for a grant by filling in the application form that can be downloaded from the website. We have been funding seed money projects, post docs, doctors in education, PHD students and specific research projects over a 3 year period. Recently we also decided to fund the creation of the Dutch patients Registry.
To access directly the English version of our website the url is: http://www.fshd.nl/index.php/en/
Kees van der Graaf, President
2243 GD Wassenaar