Contact

For general inquiries about FSHD Champions:

June Kinoshita
+1-781-301-6649
june.kinoshita@fshsociety.org

Kees Van der Graaf
+31653147599
kees@losgravos.nl

To contact individual organizations:

  • The Chris Carrino Foundation for FSHD
    4940 Merrick Road
    #187 Massapequa Park
    New York 11762 USA
    Phone: 516-680-5752
  • Friends of FSH Research
    Terry Colella, President
    217 19th Place
    Kirkland, WA 98033-4903
    425-827-8954 (p)
    fishauction@fshfriends.org
  • FSH Society
    450 Bedford Street
    Lexington, MA 02420
    1-781-301-6060
    info@fshsociety.org
  • FSHD Canada Foundation
    Neil Camarta
    Suite 201, 1100 1st Street SE
    Calgary, Alberta T2G 1B1
    phone: 403.470.0141
    neil.camarta@fshd.ca
  • FSHD Gobal Foundation
    Patrick Cameron
    PO Box A296
    Sydney South  NSW  1235
    Phone:   61 2 8007 7037
    Fax: 61 2 8007 7038
    admin@fshdglobal.org
  • FSHD Stichting
    Kees van der Graaf, President
    Kievietslaan 34
    2243 GD  Wassenaar
    The Netherlands
    +31653147599
    info@fshd.nl

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